Question 1

Why do I need a specialist if my heart defect was repaired in childhood?

Accepted Answer

Even after successful repair, congenital heart defects often require lifelong surveillance. Repairs may develop problems over time, including valve leakage, residual holes, arrhythmias, or ventricular dysfunction. ACHD specialists understand these long-term complications and can detect issues before they become serious, often allowing for earlier and less invasive treatment.

Question 2

What is transition care and when should it happen?

Accepted Answer

Transition is the process of moving from pediatric to adult CHD care, typically between ages 18-25. This is a vulnerable time when many patients fall out of care. A structured transition involves education about your condition, gradual independence in managing your health, and transfer to an ACHD specialist who will provide lifelong adult-focused care.

Question 3

Can I exercise with a congenital heart defect?

Accepted Answer

Most adults with CHD can and should exercise, but recommendations vary based on your specific defect, any repairs, and current heart function. Your ACHD specialist can perform exercise testing and provide personalized guidance on safe and beneficial physical activities, as well as any restrictions that may apply to competitive or intense sports.

Question 4

Can I have children if I have congenital heart disease?

Accepted Answer

Many women with CHD can have successful pregnancies, but this requires careful planning. Some conditions carry higher risk. Pre-pregnancy counseling with an ACHD specialist is essential to assess your individual risk, optimize your cardiac status, adjust medications, and plan for pregnancy and delivery with a specialized team.

Question 5

Will my children inherit my heart defect?

Accepted Answer

The risk of passing on a congenital heart defect varies by condition but is generally 3-5% for most defects (compared to 1% in the general population). Some conditions have higher inheritance rates, especially those associated with genetic syndromes. Genetic counseling can help assess your specific risk and discuss options.

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